Beverley Pace is chair of Meningitis Research Foundation (MRF). Her husband, comedian and actor Norman Pace, is a patron of the charity. Holly Pace was four weeks old on 29th January 1988, when the couple went shopping in their local supermarket.
On February 25, 2004, our otherwise happy life took a dark turn! Our healthy, 20 year old daughter, Becky, died unexpectedly from meningitis. Becky's death was, and continues to be, an unfathomable concept. We still cannot grasp the idea that she is gone and that we are facing the rest of our lives without her! It all happened so fast!
Our Irene died at the age of 17 years from meningococcal septicaemia strain B, which is most common in Spain, as the meningococcal B vaccine currently is not available in any country in the world although science is making progress in finding an effective vaccine. In the case of our Irene, there were two medical mistakes, one at the Primary Care Centre and another in hospital.
Following our daughter Ashleigh's tragic illness in December 1989, and given our first hand experience Jenni, and I were invited to join a group of parents , medical and health people and researchers to raise the public 's awareness of meningitis, the most dangerous bacterial infection affecting children.
I am the Mother of two children, Stepmother of three children and Grandmother of six children.
In 1995 I was shaken to the core of my existence in the sudden death of my son Michael Longo age 19 from Meningococcal Septicemia.
In March 1990 our beautiful two year old daughter Madeleine contracted Haemophilus meningitis three weeks before her third birthday. It seems like a long time ago even though, as a parent, you will never forget. It´s like a movie that you anytime can press the button "play" in your head and remember lots of horrible details from the first two days of intensive care in the hospital.
Our youngest son - Ondra, who is now 5 and a half years old, was at 22 month of age, seriously ill with pneumococcal meningitis. We can say that it was fortunate, because he survived, yet he will bear the consequences this insidious disease all of his life - hearing loss.
The first experience of meningitis I had ever encountered in my life was with my son Dan. I can honestly say it was the most frightening time of my life, thinking I was looking at a seriously ill child but no one was helping us. The lead up to the hospital admission was a nightmare and I thank God for my natural motherly instinct to protect my child.
On account of our ignorance about meningitis, we have lost our daughter Audrey. She was 12 years old and in 24 hours she died from meningococcal C meningitis. My wife and I founded the Association Audrey on 21st January 2000 in order to provide information and help as many people as possible. Now we take part in several events and we are members and co-creators of the Confederation of Meningitis Organisations (C.O.M.O.).